I've been tossing around the idea of starting a blog about travel, food, books, and other random information for awhile now... and here it is! First travel stop is Abbot Northwestern Hospital - which isn't exactly Shanghai, but hey - it's new to me! First, a huge thank you to Kelly Cruz for updating my progress through the surgery and keeping everyone up to speed on my progress. I really appreciate everything she's done for me and continues to help me with - I couldn't ask for a better friend.
A bit of background on what's going on...
On September 16th, I went in for my annual exam and my doctor found a lump in my left breast that I hadn't found in my self-exams. She wasn't overly concerned about it, but recommended that I go in for an ultrasound and mammogram as soon as possible. They made an appointment for me at the Piper Breast Center on September 22nd where they started out with the ultrasound and questions about my family medical history. I do not have a history of breast cancer in my family outside of a single great aunt on my paternal side. The radiologist was concerned with the ultrasound reading and wanted a biopsy done right away - at which point I started to get nervous. They numbed up the area, took four tissue samples, dropped in a small metal marker where they took tissue, and said I would know more by the end of the next day.
I had a call from my doctor by 10 AM the next morning (Wednesday) letting me know that it was indeed cancer and that they would schedule me an appointment with a surgeon as soon as possible. Thursday I went in for an MRI on both sides and met with my surgeon on the following Tuesday, Sept. 29th. We scheduled the bilateral mastectomy on Monday, Oct. 5th. So, in just over two weeks, I had a complete change of plans and experienced emotions and decisions I didn't imagine I would ever be in a position to make.
What I have is called Infiltrative (Invasive) Ductal Carcinoma, grades 2 of 3 and 6 of 9 on the scale that is used. The grade seems to be related to the size of the mass and shape of the cell structure. My original mass was about 1 cm and at the 4 o'clock position. The MRI showed another "area of enhancement" at the 2 o'clock position in the same left breast, and also a benign appearing lymph node on the right side. I am positive for both hormone receptors, estrogen and progesterone, which can be a good thing. However, I am also positive for the HER-2 gene, which makes my cancer more aggressive in nature, which isn't a good thing. We found out after the surgery that my cancer is only in stage one, which is awesome. I feel completely confident that this will all be clear in no time.
I had the option of a lumpectomy with guaranteed radiation, plus more biopsies on the other areas and also on the lymph nodes, but I chose to go with the bilateral mastectomy with reconstruction. I am only 31 years old, which is pretty young when talking about breast cancer, and I don't know that I would ever be comfortable trusting myself to find anything again. It would always be in the back of my mind. This way, I may be able to avoid radiation and will also have perky new boobs for the rest of my life! I think this is a pretty decent trade off, all things considered.
As Kelly mentioned, the surgery went great - the lymph nodes were clear (!!) and the reconstruction has already started. The surgeon put expanders or spacers behind my pectoral muscles. He will inject saline into the expanders every few weeks to stretch out the pectoral muscle and skin in preparation for the new implants which will be switched out a few months down the road. So, the new boobs will have my pectoral muscle on the outside... party tricks may ensue... :)
I will also be going through chemotherapy treatments over the next few months. I meet with the oncologist on October 21st to find out more about that schedule and what to expect. I am a bit nervous about the chemo, but again, it's something new that I haven't tried yet and I am cautiously curious about how my body will react. I am planning for losing my hair which gives me the opportunity to save money on salons and also to try out my life long interest in well-done dread locks... If anyone has a lead on a great dread wig - please let me know;) Plus, I might not have to shave my legs for, maybe, a REALLY LONG TIME! Every cloud has its silver lining, as they say.
I hope I've covered everything so far - please let me know if you have any questions or comments. I am hoping to have fun with this blog, so please don't be offended if I make light of topics that are serious. I truly feel lucky to have the type of cancer that I have and to have caught it at the stage that we did. I am looking at this whole experience as a new one that I plan on experiencing with as much humor and grace as possible. I feel that I will be a richer person because of it and will come out on the other end even stronger than I am today.
Thank you to everyone for all the messages and support I have received -it makes such a huge difference to me!
More soon,
Carrie
Monday, October 12, 2009
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Wow - I didn't expect it to be that long - sorry about that!
ReplyDeleteHere's to your new blog! I look forward to your adventures from Shanghai and beyond!
ReplyDeleteThanks for the update. You are amazing!
Hi Carrie. Glad everything is going good. Hope your not too sore. Please feel free to call me anytime with questions. I would like to come visit next week. I'll call you! So glad you don't have to go through radiation. That will definetely cut off the whole time of this process. Good to see you are in good spirits.
ReplyDeleteTake care,
Shauna
You're amazing Dahl-ing! Your positive attitude and loving support system will get you through this battle. Take time to relax and heal.
ReplyDeleteBig thanks to you and Kel for keeping us informed of what's going on. Your willingness to share these intimate details serves as an important education tool and reassures us that you're on the road to recovery. Keep smiling!!!
Love Mel
You're awake! And not so doped up that you're babbling incoherently! It's nice to hear that you're taking your humor, and not your cancer, seriously...now I can finally send you those wildly inappropriate notes I've been writing you and haven't sent because they're, well, wildly inappropriate. :P
ReplyDeletePreview: On the list of 'Things Nobody Ever Told You About Breast Cancer"? Your nephews want to 'kiss auntie Carrie's ouchies better'. What would Freud say?!?!
Also, I've been scoping out famous cake places in St. Paul. I feel it will be our civic duty to taste-test five or six different flavors and report back to the blogosphere. :) We can do this while wig shopping with Raquel Welch and watching Criminal Minds reruns!
<3 Jodi
Carrie,
ReplyDeleteI can not wait to find out what your party tricks will be. ;) I'm envisioning - coin bras with the tricks. maybe you could teach me. lol I'm so glad that you are feeling better. Let me when you want b movies - pizza and and cheap wine.
We miss you!
Ann
Hey Carrie - it is refreshing to read your blog!! What a great attitude and sense of humor you have. It's wonderful to hear how well things are going and the outlook is positive!! Keep up the good spirits, and when you do get down, remember you have a LOT of support to lean on! All of us at HC are thinking of you!! Kim
ReplyDeleteCarrie,
ReplyDeleteI'm amazed by your perspective on this entire situation. How refreshing. Life is 10% what happens and 90% how you deal with it. You are certainly a great inspiration. I'd love to come visit when you are up for it. Please advise - don't feel obligated but if you are up for it, let me know. I continue to pray for your healing. Take care. Know you are loved.
Elizabeth
Carrie,
ReplyDeleteYour blog is great and so well written. Laughter can carry you a long way. We miss seeing you every day and hope that you continue to make such great progress.
DT
Hey, Carrie:
ReplyDeleteAre you sure you're still on pain meds?? Holy cow! That was quite an in-depth description of what you've been through. You must be feeling some better, then. I'm grateful for that! You're in my prayers and I can't wait for your next post. I miss you!
skate
Hi Carrie,
ReplyDeleteGreat to hear you are on the mend and that your lymph nodes are all testing negative!
Since my generously endowed mom had breast CA when she was in her 70's and was oblivious to it for at least 5 years, I went to Linda, my MD, pretty scared about suffering the same fate. She said, "If we're lucky to live a good long life, we'll probably ALL get cancer. So we'll deal with it. Promise you'll get a mammogram each year, every year and we will deal with it THEN, not before.
July 17th I sat on the deck overlooking Walden Pond and was literally chased inside by flocks of mosquitos. One bit me on the left breast. It itched like crazy, was bright red and stayed that way a long time. When I went for my annual mammo, I was told to go home and come back when the redness subsided: if this took a long time, see my family Doc before returning since a false positive was to be avoided like the plague.
Anyway, you are my poster child for Dealing with problems, neither ignoring nor over-reacting to them. You are one level-headed woman and I admire you very much.
I am now awaiting Lyme disease results from a blood sample and am finally ready to re-schedule that mammogram.
Best wishes, Wonder Woman!
Ok I just love you. You make me laugh out loud. this great attitude will get you through this with flying colors. I'm still planning on stopping over to see you perhaps this weekend if you are up for it:) Looking forward to your next post. Just want you to know that I am thinking about you! Kelly
ReplyDeleteLoving the blog so far! I can teach you how to do the party tricks. ;-) Hope to see you soon, now that I am not contagious!
ReplyDeleteHey Carrie,
ReplyDeleteWanted to send some positive healthy vibes & prayers your way as you head into this week & chemo.
Great blog and sure that keeping this up is going to be a huge help in keeping your head & spirits up.
terri